A rare glance

On the occasion of World Sanfilippo Syndrome Day, we filled the story ‘Once upon a time… Sanfilippo Syndrome’ written by our Adriana and winner of the short story section of ‘A Rare Look LAB’ with new emotions.

Giorgio e Francesco

Support our research

At the moment for our little ones there is no cure, there are only small expedients to try to live with the symptoms on a daily basis, but there is one very important thing we must have hope for: research.