A rare glance
On the occasion of World Sanfilippo Syndrome Day, we filled the story ‘Once upon a time… Sanfilippo Syndrome’ written by our Adriana and winner of the short story section of ‘A Rare Look LAB’ with new emotions.
Our children's stories
Support our research
At the moment for our little ones there is no cure, there are only small expedients to try to live with the symptoms on a daily basis, but there is one very important thing we must have hope for: research.