Pellegrino: a name and a programme.
Today Pellegrino completes another stage of his journey, this bizarre wandering that goes backwards and forwards, due to an ungrateful travelling companion called mucopolysaccharidosis 3.
Today is Pellegrino’s fifteenth birthday and even though the follies and pasties are now difficult for him, he, in order not to lose the habit, watches them all on TV, following the adventures of his beloved Pippi Longstocking.
On this special day, however, we want to forget all the autonomy he has lost and to toast to his tenderness, his calmness, his cuddles, his strenuous walks, his ball games.
Today Pellegrino celebrates his birthday and all he asks for as a gift is a thread of hope. Hope for a future that does not frighten with every extra candle to be blown on the cake.