In 2013, Glenn and Cara O’Neill were looking for answers as to why their three-year-old daughter, who loved running and singing, was starting to show developmental lag.
After many tests, specialists and a misdiagnosis of autism, they were told that Eliza has Sanfilippo syndrome.
Like all parents, they decide to fight for their daughter’s future, to turn hope into action. And they create the Cure Sanfilippo Foundation, a non-profit organization based in South Carolina (United States) determined to take all the paths that lead to a treatment or cure of the disease. Not only for their daughter, but for all children with Sanfilippo.
Cure Sanfilippo Foundation has come to represent a group of Sanfilippo families nationally and globally, as well as friends and supporters who are fighting for a single goal: to save children.