Matteo is eight years old, a beautiful age of discoveries, of goals, of novelties.
Matteo, however, is a Sanfilippo child and it works the other way round: goals are to be told in the past, the future is the time of loss.
Can anyone among you imagine how much sadness goes with nostalgia for the past? The scooter, once worn out by wild rides, is now crammed into the cellar, Matteo can no longer use it. Hide-and-seek is played by others, Matteo watches them, now he can no longer crouch behind that hedge, he can’t do it. The words spoken in bursts with a mouth full of joy are now uncertain and imperfect stutters. And all those balls he rolled darting steadily and surely, now receive weak and lopsided kicks.
There remains the light in those big eyes that now speak better than the mouth. There remains the laughter that drives away every cloud. And that cheeky good humour that Matteo never abandons, softening even the grumpiest of grumpies. Matteo is eight years old and his progress is beginning to be a memory.
The meaning of the donations we are asking for is to support research to fuel a dream. The dream, for Matteo’s parents, is that there will be no more families living in memory.