Giuseppe, 22 years old, my young man!
So many beautiful memories of you as a child resurface in me every day, the bad ones I try to put aside, but they are always there, in a little corner of my head, causing so much pain in my heart.
At the time of the diagnosis the geneticist told us: make him happy, let him do whatever he likes. And so we did. Balls galore, the sea all summer long, walks and lots of ice cream that was a wonder to watch you eat. You stood out, blond, cheerful, always smiling.
Then, shortly after adolescence, everything slowed down to the point where you could no longer leave the house. We are always by your side and we will fight until a cure arrives that is overdue for you but that can serve your little Sanfilippo brothers.

Mum Daniela

Support research

Al momento per i nostri piccoli non c’è una cura, ci sono solo dei piccoli espedienti per cercare giornalmente di convivere con i sintomi ma c’è una cosa importantissima su cui dobbiamo avere speranza: la ricerca.

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