Daniele

Daniele

Imagine a serene and chubby child, a child who ate and savoured life with gusto. Imagine dancing, singing, playing, running and rolling balls. Imagine a warm family, united and gathered around that sweet little boy, the fourth of four siblings, the most pampered. Imagine an ordinary life, a sum of small happy moments of normality. Imagine the first cracks, the first doubts that arose in the hearts of two parents: hyperactivity, sluggishness and then inability to learn, the first stumbles. Imagine the anguish, the crossroads between hospitals and specialists, the collection of symptoms as shopping points.

Imagine the earthquake: a diagnosis that tastes like a sentence, an unknown disease, ruthless, difficult even to pronounce. Imagine that united and warm family, now distraught and lost. Imagine the fracture, the bleeding wound, the breath caught in your throat. Imagine a slow and difficult time, wiping away tears that often resurface.

Imagine a scar of the thick, visible kind that sometimes itches again. Imagine that child who savoured life, now barely swallowing. Imagine a smile in spite of everything, feet that tenaciously still kick the ball, the courageous love of a father, a mother and three brothers rising from the ashes like a phoenix and becoming more welcoming than before.

Imagine a sum of a few normal moments and many precarious ones, resulting in a life that is full, understood, suffered, but pregnant with dignity. This is the story of DANIELE, who is now fourteen years old, and his family. Here, now imagine a hope: we entrust him into your hands.

Sostieni la ricerca

Al momento per i nostri piccoli non c’è una cura, ci sono solo dei piccoli espedienti per cercare giornalmente di convivere con i sintomi ma c’è una cosa importantissima su cui dobbiamo avere speranza: la ricerca.