Anita and Giada, two sisters who share everything, even the same illness.

After Giada’s diagnosis, the hope that the future would be kinder for Anita was strong, but once the diagnostic process was set in motion, their parents had to deal with a double pain. Two for two: strike.

This is the cruelty of hereditary diseases: it’s all a game of numbers, of probabilities, a Russian roulette. But behind numbers and probabilities there are individuals with their own characteristics and peculiarities. Anita is now almost 13 years old and has a very strong personality. She has never spoken but has always made herself well understood, she has her own way of communicating. She is a high-contact child, needs cuddles, presence, tight hugs and tenderness. She is also terribly lazy, nothing is more attractive to her than the sofa. And biscuits. And pasta. Perhaps eaten in the comfort of the sofa.

There is, however, an infallible ploy to get her active: the ball! Anita loves to play with it, offer her a ball and you’ve won her over. There is one passion, however, that sets her apart from the rest. Anita is a huge fan of Raffaella Carrà, she spends hours dancing, listening to her songs and making “noise, noise!”. What was it Raffaella used to say? “Aaa, aaa, a far (donations) you begin!”

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Al momento per i nostri piccoli non c’è una cura, ci sono solo dei piccoli espedienti per cercare giornalmente di convivere con i sintomi ma c’è una cosa importantissima su cui dobbiamo avere speranza: la ricerca.

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