Cure Sanfilippo Foundation

In 2013, Glenn and Cara O’Neill were searching for answers as to why their three-year-old daughter, who loved to run and sing, was beginning to manifest a developmental delay.

After many tests, specialists and a misdiagnosis of autism, they are told that Eliza has Sanfilippo syndrome.

Like all parents, they decide to fight for their daughter’s future, to turn hope into action. And they create the Cure Sanfilippo Foundation, a non-profit organisation based in South Carolina (USA) determined to pursue all avenues leading to a treatment or cure for the disease. Not only for their daughter, but for all children with Sanfilippo.

Cure Sanfilippo Foundation has come to represent a group of Sanfilippo families nationwide and globally, as well as friends and supporters fighting for one goal: to save children.